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Quarantined B.C. mom say pandemic has put special-needs families in 㽶Ƶֱcrisis mode㽶Ƶֱ

Surrey㽶Ƶֱs Christine Williamson shares family㽶Ƶֱs challenges, strengths
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Baking is among Mikayla Williamson㽶Ƶֱs favourite things to do, and it㽶Ƶֱs one of the activities keeping her busy during her family㽶Ƶֱs quarantine at their Cloverdale home. (Contributed photo)

Being quarantined at home for two weeks is a daunting thought for most, but the restrictions take on a whole other meaning for those with special needs and their loved ones.

One Cloverdale mom whose family is finding ways to cope after returning from a trip to Florida, acknowledged the exercise is important in helping prevent the spread of COVID-19, in the event one of them picked up the virus while they were away.

㽶ƵֱWe㽶Ƶֱre all symptom-free 㽶Ƶֱ so far,㽶Ƶֱ Christine Williamson said Monday, of herself, husband Chad, daughters Jennah and Mikayla and her in-laws. 㽶ƵֱWe just want to make sure we㽶Ƶֱre not a part of the problem, and we want to stay safe.㽶Ƶֱ

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Still, the impact COVID-19 has had on the routines and therapies that Mikayla needs to help manage daily life as a person with autism and other diagnoses has been severe.

In short, 㽶Ƶֱit㽶Ƶֱs crisis mode,㽶Ƶֱ said Williamson, noting the sentiment is one shared by many families who have special needs children.

And, the quarantine 㽶Ƶֱ which, for the Williamsons, ends Monday (April 6) 㽶Ƶֱ has only exacerbated it.

Usually, workers and therapists are in and out of the Williamson family home every weekday, helping 18-year-old Mikayla with everything from managing her behaviours to schoolwork. But now, 㽶Ƶֱshe has none of that,㽶Ƶֱ her mom said.

㽶ƵֱFor kids on the autism spectrum, routine is everything,㽶Ƶֱ Williamson said, describing her daughter as 㽶Ƶֱquirky and funny,㽶Ƶֱ with a love of reptiles and swimming, and a knack for the artistic.

㽶ƵֱEverything that they do is regimented. It㽶Ƶֱs how they have order in their life. And so she has none of that. On top of that, we㽶Ƶֱre now quarantined. We can㽶Ƶֱt go to the park, we can㽶Ƶֱt do anything.㽶Ƶֱ

To make matters worse, 㽶Ƶֱbecause we don㽶Ƶֱt have answers, we can㽶Ƶֱt calm her fear and anxiety of it.㽶Ƶֱ

㽶ƵֱHer meltdowns are worse and more frequent. Her level of being able to cope is not there.㽶Ƶֱ

No stranger to struggles, however 㽶Ƶֱ the family has weathered everything from layoffs to Williamson㽶Ƶֱs own battles with mental illness over the past two decades 㽶Ƶֱ Williamson said an important way that she and her family have learned to cope is to focus on what they can control, rather than what they can㽶Ƶֱt. Things like the 㽶Ƶֱthermostat㽶Ƶֱ in their home 㽶Ƶֱ and not the one that controls the actual temperature.

They㽶Ƶֱve set up 㽶Ƶֱno-judgment zones㽶Ƶֱ where as a family they can say whatever they need to without fear of judgment or reprisal, and then together, work on coming up with two positives out of whatever was said.

Recognizing the impact of limited space in the home on each occupant has also been important, Williamson said; honouring expressed needs for time to themselves, 㽶Ƶֱeven if we might be put out for a bit.㽶Ƶֱ

㽶ƵֱJust a lot of things like that 㽶Ƶֱ being willing to be vulnerable and to speak what it is that we㽶Ƶֱre feeling in any given moment㽶Ƶֱ feel what we need to feel and then move on from that.㽶Ƶֱ

They㽶Ƶֱre skills that can be applied to anybody, she noted, giving credit to Emotions BC Health and Wellness Society, an organization that formed in 2018 㽶Ƶֱto provide and deliver programs and services to families and caregivers of loved ones dealing with emotion dysregulation caused by diagnosed or undiagnosed mental health challenges.㽶Ƶֱ

㽶ƵֱEmotionsBC was created to eliminate barriers and to enhance health and wellness for loved ones struggling with mental health challenges as well as families 㽶Ƶֱ and therefore, potentially and quite literally, saving lives,㽶Ƶֱ an introduction on the society㽶Ƶֱs website states.

Williamson said the society helped their family 㽶Ƶֱin some of our darkest moments,㽶Ƶֱ and a desire to return the favour by being a beacon of hope for others drove her and her husband to become involved not just as program participants but also as facilitators of some of the programs. Williamson also now holds the role of administrative assistant.

In these days of social distancing, self-isolation and quarantine, supports are having to be given and accessed in different ways, many of them online. For Mikayla, that means connecting with her therapy team through such avenues as Zoom, with her mom at her side to guide her 㽶Ƶֱ though the sessions are a far cry from the support she gained through her one-on-one therapies.

Williamson said it doesn㽶Ƶֱt take a grand gesture to assist families that are struggling 㽶Ƶֱ it can be as simple as offering to add a couple extra items to their own grocery list. Neighbours can also share a tea 㽶Ƶֱdate㽶Ƶֱ from the safety of their respective porches, just to check in.

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㽶ƵֱPractical things like that go a long way to break the isolation,㽶Ƶֱ she said.

㽶ƵֱWe㽶Ƶֱre used to isolation, but this is different,㽶Ƶֱ she said. 㽶ƵֱAnd because there㽶Ƶֱs so much more fear and concern, and there㽶Ƶֱs no end in sight, there㽶Ƶֱs no game plan. Everyone㽶Ƶֱs affected on such a deeper, bigger level, that the sense of community, to me, means that you㽶Ƶֱre really checking in on people and giving them a space㽶Ƶֱ to share how they㽶Ƶֱre really feeling and what they㽶Ƶֱre really thinking.㽶Ƶֱ

Williamson said she also feels 㽶Ƶֱslightly strongly㽶Ƶֱ about those who aren㽶Ƶֱt taking social-distancing and other recommended or ordered preventative measures seriously.

Acknowledging that she was among those who initially doubted the seriousness of the pandemic, Williamson said her mind changed when she realized how quickly it was spreading and how vulnerable Mikayla was.

㽶ƵֱBecause of all the struggles my daughter has, I am concerned for her safety,㽶Ƶֱ she said. 㽶ƵֱShe puts her hands in her mouth all the time.

㽶ƵֱI feel that if people could understand that because we don㽶Ƶֱt know what we㽶Ƶֱre dealing with, there isn㽶Ƶֱt a defense for it. If we could just take a step back㽶Ƶֱ just re-prioritize a little bit, we have a chance to save thousands of lives.㽶Ƶֱ

Williamson said shifting her own mindset around the quarantine from one of 㽶Ƶֱfeeling like the walls are closing in on me,㽶Ƶֱ to one that looks at abiding by the measures as a gift was an important step for her on Sunday; the halfway point.

As difficult as the journey is and will continue to be for an undetermined time, however, she said she is confident there are brighter days ahead.

㽶ƵֱWhen I look at the virus, in and of itself, I feel that we have a lot of skills and resiliency,㽶Ƶֱ she said.

㽶ƵֱIt㽶Ƶֱs not that there aren㽶Ƶֱt tears and concerns and unknowns. We have already weathered so many storms㽶Ƶֱ you always find a way to rebuild from the ashes of what you㽶Ƶֱve gone through.㽶Ƶֱ

Online resources Williamson suggested include the Emotions BC website, at (for families, caregivers and loved ones), and and (for programs, training and supports for individuals as well as families).



tholmes@peacearchnews.com

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Baking is among Mikayla Williamson㽶Ƶֱs favourite things to do, and it㽶Ƶֱs one of the activities keeping her busy during her family㽶Ƶֱs quarantine at their Cloverdale home. (Contributed photo)
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The Williamson family 㽶Ƶֱ dad Chad, mom Christine, Jennah (at back) and Mikayla 㽶Ƶֱ at Glow in Abbotsford in December. (Contributed photo)


Tracy Holmes

About the Author: Tracy Holmes

Tracy Holmes has been a reporter with Peace Arch News since 1997.
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